Support Organizations for Neurogenic Orthostatic Hypotension

PARKINSON'S DISEASE

American Parkinson Disease Association (APDA)

The APDA is a grassroots organization that strives to ease the burden of living with Parkinson's disease through a nationwide  support network, and to find a cure through the funding of research.

www.apdaparkinson.org

Davis Phinney Foundation for Parkinson’s

The Davis Phinney Foundation for Parkinson’s is committed to supporting programs and research that help people living with Parkinson’s to manage their disease so they can “live well today.”

www.davisphinneyfoundation.org

National Parkinson Foundation® (NPF)

The NPF aims to improve the lives of people living with Parkinson’s disease, both patients and their families, through a focus on expert care and research.

www.parkinson.org

Parkinson’s Action Network (PAN)

PAN partners with other PD organizations and utilizes a powerful grassroots network to educate the public and government leaders on better policies for research and an improved quality of life for people living with PD.

www.parkinsonsaction.org

Parkinson's Disease Foundation (PDF)

A leading national presence in PD research, education, and public advocacy, PDF funds promising scientific research while supporting people living with PD through educational programs and services.

www.pdf.org

The Michael J. Fox Foundation

The Michael J. Fox Foundation is dedicated to finding a cure for PD through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with PD.

www.michaeljfox.org

World Parkinson Coalition (WPC)

WPC is a nonprofit organization that provides an international forum to learn about the latest advancements in Parkinson’s disease research, medical practices, advocacy, and caregiver initiatives.

www.worldpdcoalition.org

MULTIPLE SYSTEM ATROPHY

The MSA Coalition

The MSA Coalition is focused primarily on facilitating and funding MSA research that will lead to a cure for this rare neurodegenerative disorder. Additionally, the MSA Coalition provides education and support to patients and caregivers, provides education to healthcare professionals, and participates in MSA advocacy activities.

www.multiplesystematrophy.org

RELATED ORGANIZATIONS

CurePSP®

CurePSP, a leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, has funded more than 160 research studies and is a source of information and support for patients and their families, care partners, investigators, healthcare providers, and other healthcare professionals.

www.psp.org

Dysautonomia International

This nonprofit organization, run entirely by volunteers, seeks to identify the causes and cures for all forms of dysautonomia, including multiple system atrophy and pure autonomic failure, and to enhance the quality of life for people living with these illnesses. Dysautonomia International provides funding for research on various forms of dysautonomia, raises awareness of the condition within the medical profession, and empowers patients and caregivers by providing them with useful tools, resources, and information.

www.dysautonomiainternational.org

The National Organization for Rare Disorders (NORD)

NORD is a not-for-profit patient advocacy organization that strives to identify, treat, and cure rare disorders through educational, advocacy, research, and patient services programs.

www.rarediseases.org

The Foundation for Peripheral Neuropathy

The Foundation for Peripheral Neuropathy promotes collaboration among neuroscientists and physicians; is a resource of information for patients, families, and healthcare providers; funds scientific research; and raises awareness of peripheral neuropathy with the mission of improving the lives of people living with this condition.

www.foundationforpn.org

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IMPORTANT SAFETY INFORMATION

EXPAND

WARNING: SUPINE HYPERTENSION (this is high blood pressure while lying down)

When lying down, elevating the head and upper body lowers the risk of high blood pressure. Check your blood pressure in this position prior to starting and during NORTHERA treatment. If you experience high blood pressure, talk to your doctor about your NORTHERA treatment.

IMPORTANT SAFETY INFORMATION

EXPAND

WARNING: SUPINE HYPERTENSION (this is high blood pressure while lying down)

When lying down, elevating the head and upper body lowers the risk of high blood pressure. Check your blood pressure in this position prior to starting and during NORTHERA treatment. If you experience high blood pressure, talk to your doctor about your NORTHERA treatment.

For more information, please see the full Prescribing Information, including Boxed Warning for supine hypertension.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.